The mPower Public Researcher Portal is the data access point for the mPower mobile Parkinson Disease study. mPower is an mobile application-based study piloting new approaches to monitoring key indicators of Parkinson Disease progression and diagnosis by supplementing traditional behavioral symptom measurements with novel metrics gleaned from sensor-rich mobile devices.
As a scalable, inexpensive, and non-invasive method for frequent measurement and tracking of symptoms, thehas been able to survey a large, longitudinal cohort of volunteers with PD and controls. The goal of this study is to understand the frequency and degree of variation of patient symptoms, the sources of those variations, and the potential modulators of those variations. The insights gained through these data may help develop personalized interventions to mitigate the dynamic variability in the disease.
Data from more than 9,500 participants in the mPower study, a mobile research study developed by Sage Bionetworks, has been made available to the research community worldwide. These data, which consists millions of data points collected on a nearly-continuous basis through mPower, will help speed scientific progress toward treatments that could improve the quality of life for people with Parkinson’s disease. Sage Bionetworks encourages members of the research community to learn more about accessing the data and becoming a qualified researcher by visiting the mPower Public Researcher Portal which includes FAQs for data users. Learn about procedures for accessing mHealth data. Press Release.
Nature Publishing Group Articles
· The mPower study, Parkinson disease mobile data collected using ResearchKit, describes the study implementation, demographics, data collected and an overview of data analysis.
· Smartphones as new tools in the management and understanding of Parkinson’s disease, is an editorial about mPower which discusses the use of smartphones to implement precision medicine for studying Parkinson’s disease. The article encourages patients, researchers and advocates to work together to better understand Parkinson’s and adjacent movement disorders.
· First, design for data sharing, a commentary on designing mobile Health (mHealth) research studies that allow for data sharing.
mPower Data Release In the News
- ALZ Forum, Mobile Phone App for Parkinson’s Patients Tests New Model for Data Sharing (24 Mar 2016)
- MIT Technology Review, Apple Hopes You’ll Talk to Your iPhone and Call Your Doctor in the Morning (21 Mar 2016)
- Nature, Mobile-Phone Health Apps Deliver Data Bounty (21 Mar 2016)
- CBS Radio, Interview with Stephen Friend about mPower App Data Release (9 Mar 2016)
- International Business Times, Apple Inc’s ResearchKit Enables iPhone Parkinson’s Disease Study to Release Treasure Trove of Data (3 Mar 2016)
- MobiHealth News, Sage Bionetworks releases data from first six months of Parkinson’s mPower ResearchKit study (3 Mar 2016)
- HIT Consultant, Sage Bionetworks Releases ResearchKit Data from 9,500 Parkinson’s Patients for Researchers Worldwide (3 Mar 2016)
- Fierce Healthcare, Open-science nonprofit trots out promising data from study of iPhone app for Parkinson’s
(3 Mar 2016)
- Politico: eHealth Report, ResearchKit Bears Fruit (3 Mar 2016)
Press Release: Sage Bionetworks Uses Participant Feedback to Update mPower App mPower app is the first to use Apple’s new CareKit platform to deliver better insights to Parkinson’s disease patients
mPower Researcher Community Webinar held March 8, 2016 10:00 am PST: Watch the Webinar